Local Family's Journey with Marfan Syndrome
Carson’s diagnosis journey - when he first started to experience symptoms, frustration surrounding misdiagnoses, how long it took to get the correct diagnosis
Importance of advocating for your children - advice to other parents/caregivers
Carson’s current lifestyle - how Carson manages his condition, his outlook for the future, current hobbies/interests
How the family received support from the Marfan Foundation; how they can learn more about the condition
Carson Flanagan, living with Marfan Syndrome
Amy Flanagan, Mother/Caregiver to Carson
The Marfan Foundation
http://Marfan.org
WHHI Daily News Anchor: Betsy McDaniel
July 2024
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